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0:10
Metachromatic Leukodystrophy (MLD) is a rare, terminal disease that destroys the white matter in the brain. Three of my four children were diagnosed in 2017 with this genetic disease. Kay watches from above because diagnosis came too late for her. My two boys have gone through bone marrow transplants in hope to stall the destruction of white matter. You can see here, it’s not worked for my oldest son. He is still progressing 💔 #fmld #metachromaticleukodystrophy #onthisday
647 views
2 months ago
TikTok
smilelikekay
0:33
Leukodystrophy (Medical Condition)
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May 11, 2015
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Hes still got it😏💙🦁 #physio #hospitallife #tbcd #geneticcondition #raredisease #leukodystrophy
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She was lost for words🤭 #hospitallife #tbcd #raredisease #geneticcondition #leukodystrophy
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3:01
This one was hard….thank you for all your patience and support 🫶 #poppysstory #tbcd #leukodystrophy #childloss | Daily Sunset
37.8K views
9 months ago
Facebook
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0:52
Kahit nasa condo na kami iisa pa rin pangarap at gusto ni Mata. Ang magkaroon ng sariling bahay na siya mismo ang may pundar #Leukodystrophy #Reupload | Mata team tambay
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6 months ago
Facebook
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This one was hard….thank you for all your patience and support 🫶 #poppysstory #tbcd #leukodystrophy #childloss | Daily Sunset
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9 months ago
Facebook
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4:24
I know this is a long video so I appreciate everyone that made it to the end! I get asked about TBCD research and how it will help Leo all the time, so hopefully my terrible drawings are helpful💙 There is a lot more to the research than I have explained so if you have any questions, please drop them in the comments below 💙🦁 #hope #medicalresearch #science #savealife #savemylife #alifeforleo #raredisease #tbcd #curetbcd #leukodystrophy #disability
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May 8, 2023
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7 months ago
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Leukodystrophy genu recurvatum #peshawar #kohat #hango #parachinar #karak #lakkimarwat #bannu #waziristan #northwaziristan #southwaziristan #dikhan #chashma #dgkhan #afghan #afghanistan #peshawarzalmi #shabqadar #charsadda #mardan #swabi #swat #dir #batagram #mansehra #abbotabad #haripur #attock #noshehra #pabbi #charad #umarzai #mandani #bajawar #momandagency #kurram_agency #viral #viral #viral #please #tiktok
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